HEMOCHROMATOSIS: INFORMATION SORTED ON SUBJECT

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ARTICLES (scientific and magazines)

LINKS DIFFERENT COMPLAINTS IN HEMOCHROMATOSIS

FAQ on Hemochromatosis
Diagnosis of hemochromatosis
Management of hemochromatosis
(Help us) getting more public attention for hemochromatosis
Phlebotomy
Blood donation
Possible (but not all nessesary) medical procedures in hemochromatosis
Newsgroups (talking to doctors and other patients) about hemochromatosis
Hemochromatosis Clinics
DNA-testing
High T.S.% or ferritin: secondary causes
Heterozygote
Compound heterozygote
Hereditairy hemochromatosis without mutations
Diet, Vitamins and nutrition
Iron deficiency
Ferritin
Iron metabolism, etc.
Non Transferrin Bound Iron (NTBI)
Iron absorbtion
Full articles from scientific magazines online (free)
Iron supplementation
Different lab-tests
Images (of the liver) in hemochromatosis
Juvenile Hemochromatosis
Children and Neonatal Hemochromatosis
The history of bloodletting
Insurance
Screening for hemochromatosis
Other information on Hemochromatosis
General information for health issues
Wilson's disease
Animals and iron overload
Links on liver diseases
Secondairy Hemochromatosis
Deferiprone (L1) and Desferal
Cholesterol
Alcohol
Smoking
Aids and Iron


Iron deficiency

* Iron deficient anemia by the Iron Disorders Institute

* Iron status: Arbor Nutrition guide

* Iron Deficiency: Tests used to assess iron status in Iron Deficiency

* Diagnosis of Anemia

* IRON-deficiency STATUS STUDIES


Ferritin

* Top 100 people with highest ferritin
* Ferritin Tutorial

* Ferritin Iron-Storage Protein

* Health Answers: Ferritin

* Interpretation of Lab Test Profiles


Iron metabolism, etc.

* Iron Metabolism: Harvard

* Australian Iron Status

* Iron, zinc and other minerals

* Transferrins

* Net Biochem: Heme and iron

* Fenton reaction

* Omim: Transferrin


Non Transferrin Bound Iron

* Desferrioxamine-chelatable iron (DCI), a component of serum non-transferrin-bound iron (NTBI) used for assessing iron chelation therapy; Transfus Sci 2000 Dec 1;23(3):241-242

* PDF: The importance of non-transferrin bound iron in disorders of iron metabolism; Transfus Sci 2000 Dec 1;23(3):185-192

* PDF: The assessment of serum nontransferrin-bound iron in chelation therapy and iron supplementation; Blood 2000 May 1;95(9):2975-82

Iron absorbtion (see allso vitamins and nutrition)

* Iron Metabolism: Harvard

* Weinberg: hemochromatosis

* Cuppa a day is live saver (tea)(BBC: 5 nov. 1998)

* Absorption of non-heme iron (in normal persons!!!)


(Full) articles from scientific magazines online

* Free Medical Journals.com

* Gene Letter

* Find articles.com (Free full text articles)

* Search some journals, including JAMA

* British Medical Journal

* Search: acponline.org

* New England Journal of Medicine

Lists of scientifc magazines (usually not full text)

* Biological journals and their abbreviations

* Pubmed: Magazines on Genetics

* Pub Med: "all" medical journals

* Links to medical journals


Iron supplementation and supplements

* Facts about dietary supplements: Iron!!!

* Iron deficiency and overload in relation to nutrition, M.Q.I. Spanjersberg en E.H.J.M. Jansen, RIVM; The Netherlands (sept 2000)

* Dangers of Iron supplements, nov. 2000

* FDA-warning for iron-supplements (jan 1997)

* Hemochromatosis presenting as acute liver failure after iron supplementation

* Before you reach those iron pills: oktober 1998 Newschoise

* Pediatric Iron Poisonings in the US

* Iron poisening remains a problem for kids

* In irons grip: do not use iron pills!

* Iron added to food and medicine USRDA: Leslie N Johnston

* Heavy metal toxicity and iron overdose: Mark L. Winter, Ph.D.


Different lab-tests

* Set of lab-tests interpretations

* Normal values for Lab-tests

* Explanation of "Iron-lab tests" (letter)

* Iron tests; Medical Encyclopedia


Images (of the liver) in hemochromatosis

* Lot of images on hemochromatosis (-livers)

* Images of the liver

* X-rays with French comments


Juvenile Hemochromatosis

* Juvenile Hemochromatosis: Omim

* Juvenile genetic hemochromatosis is clinically and genetically distinct from the classical HLA-related disorder; Blood 1998 Oct 15;92(8):2979-81


Children and Neonatal Hemochromatosis

* Successful chelation therapy in a case of neonatal iron overload following intravascular intrauterine transfusion.

* AHS on neonatal HH

* Pediatric Iron Poisonings in the US

* Preventing Iron Poisonings in children: FDA

* New treatment for neonatal haemochromatosis: Canada***BK

* Normal hematologic values for children part 1

* Normal hematologic values for children part 2

* Children and Hemochromatosis

* Screening young children: Canadian Hemochromatosis Society

* Article Pediatrics, feb 2000

* Neonatal hemochromatosis:
Alex Knisely, a researcher, has a long-standing interest in neonatal hemochromatosis. He would be happy to speak with parents of children affected by the disorder and to give his opinion on individual cases to the physicians who are attending the children or who are counseling the parents.
409-772-2853 (O), -4676 (F) Department of Pathology,
Division of Surgical Pathology
301 University Boulevard
University of Texas Medical Branch
Galveston, TX 77555-0588 USA

Genetic research on neonatal heamochromatosisRe

* Neonatal Hemochromatosis: Neatology on the web

* Liver transplant in baby with neonatal hemochromatosis

* Parents baby with neonatal hemochromatosis found their information on the internet

* Parents baby with neonatal hemochromatosis found their information on the internet: part 3 1999

* Liverdiseases in children

* Omim: Neonatal Hemochromatosis


The history of bloodletting

* The history of bloodletting

* The History of bloodletting: AHS

* CNN Bloodletting attracts daily patients in India

* Phlebotomy the ancient art of bloodletting

* History of bloodletting

* Information on Leeches


Insurance

* Will Your Genes Prevent You From Getting Health Insurance?

* Insurance by the (English) Haemochromatosis Society

* The risks of genetic testing: CBS news 26 june 2000 featuring Sandra Thomas from the AHS (Click on: video)


Screening for hemochromatosis

* CDC on screening for HH

* Genetics of Iron Storage and Hemochromatosis (apr 2001) (PDF)

* PDF: Population screening in hereditary hemochromatosis: 2000

* April 1999: Population Screening for Hemochromatosis xxxArticle in PDF

* CDC: Public health strategies to prevent Complications of hemochromatosis (nov 1999)

* May 2000: Population Screening for Hemochromatosis: A Comparison of Unbound Iron-Binding Capacity, Transferrin Saturation, and C282Y Genotyping in 5,211 Voluntary Blood DonorsxxxArticle in PDF

* May 2000: Screening for Hemochromatosis xxx Article in PDF

* 7 december 2000 (Reuters) Screening Newborns for Genetic Disease (HHC) Helps Parents

* Getting tested for America´s most common genetic disease; Fox news

* Cost effectiveness studies for hereditary hemochromatosis

* Genetic test for hemochromatosis debated (sept 2000)

* Prevalence of HH in 16.0312 patients: 1 dec 1998 Annals of Internal Medicine

* Evaluating the evidence for hemochromatosis screenings: 1 dec 1998 Annals of Internal Medicine

* Haemochromatosis gene C282Y homozygotes in an elderly male population (Lancet, july 99)

* PDF: Transferrin saturation and screening of genetic hemochromatosis: 1998 feb


Other information on hemochromatosis

* Endoscopy center

* Yahoo: Hemochromatosis

* MedicineNet on hemochromatosis

* Hemochromatosis: General information

* Jackson Hemochromatosis information

* Health World

* Healthanswers: Hemochromatosis information

* Info medicinenet

* Public health Genetics on Haemochromatosis

* Family village

* Iron-watch

* Search Canadian Health resources

* Search the CDC on Hemochromatosis

* Search national institutes of health

* NIDDK on Hemochromatosis

* Omim: Hemochromatosis

* Medline: Prevalence (and SCREENING)

* Hemochromatosis

* General information from the American Liver Foundation

* Irish Haemochromatosis Society --> not yet working!!!


General information for health issues

* Health resources

* A list of all Health Issues: MedicineNET


wilson's disease

* Links for Wilson's disease


Animals and iron overload

* A letter from Leslie Johnson, DVM

* Leslie Johnston DVM on iron overload

* Softbill (birds?) and Hemochromatosis

* Rare Rhino With Mysterious Disease Euthanized at Zoo (after anemia and iron overload)

* AHS pages on animals and iron overload

* Medline: Hemochromatosis and bird

* Medline: Hemochromatosis and horses

* Medline: Hemochromatosis and cattle

* Medline: Hemochromatosis and dogs

* Effect of oral administration of excessive iron in adult ponies.

* The hfe gene of browsing and grazing rhinoceroses


Links on liver diseases

* Diseases of the liver

* Links on the liver (not sorted)

* American Liver Foundation

* Canadian Liver Foundation

* Euroliver Foundation

* Deutsche Leberhilfe

Secundairy hemochromatosis

* Thalassemia.com

* Joint Center for Sickle Cell and Thalassemic Disorders

* Thalassemia by the Iron Disorders Institute

* Beta Thalassemia: General Information from MedicineNet

* Iron Disorders Institute about Sideroblastic Anemia

Hyperferritinemia (abstract)

* Secundary hemochromatosis as a long-term complication of treatment of hematologic malignancies (PDF)

* OMIM: Iron overload in Africa

* Pulmonary hemosiderosis (iron in the lungs)

* Total iron-binding capacity and serum transferrin determination under the influence of several clinical conditions


Deferiprone (L1) and Desferal

* Transfusional iron overload and chelation therapy with deferoxamine and deferiprone (L1): Transfus Sci 2000 Dec 1;23(3):211-223

* Competition studies of L1-deferiprone with copper and iron. Possible implications on efficacy, toxicity and new therapeutic applications; Transfus Sci 2000 Dec 1;23(3):259-261

* Safety and efficacy of subcutaneous bolus injection of deferoxamine in adult patients with iron overload; Blood 2000 May 1;95(9):2776-9

* The Sydney Children's Hospital experience with the oral iron chelator deferiprone (L1); Transfus Sci 2000 Dec 1;23(3):239-240

* Safety and effectiveness of Deferiprone Part 1 BK

* Safety and effectiveness of Deferiprone Part 2 BK


Cholesterol

* CNN: 1995: Cholesterol camapign paid of, but one doctor insists iron is the problem

* CNN.com - Evidence suggests that giving blood has health benefits (small sentence on cholesterol and oxidation through iron)- April 26, 2000

Alcohol

April 1996: Alcoholism in hereditary hemochromatosis revisited: Prevalence and clinical consequences among homozygous siblingsHepatologyArticle in PDF

Smoking

* Marlboros and Iron Don't Mix

* Heterozygotes and extra risk when smoking

Aids and Iron

* Combining iron chelators with the nucleoside analog didanosine in anti-HIV therapy; Transfus Sci 2000 Dec 1;23(3):249-250

* Medline; Aids and Hemochromatosis

* Medline; Iron and Aids