HEMOCHROMATOSIS: INFORMATION SORTED ON SUBJECT |
ARTICLES (scientific and magazines) |
LINKS | DIFFERENT COMPLAINTS IN HEMOCHROMATOSIS |
|---|
Excess Iron List: Very active maillist by the Iron Disorders Institute
A blank
message to these addresses performs the following:
ExcessIron-on@mail-list.com gets
you on the list.
ExcessIron-off@mail-list.com gets
you off the list.
ExcessIron-switch@mail-list.com
toggles you to/from the fancy digest version.
ExcessIron-vacation@mail-list.com
toggles you to/from the vacation list.
Post your message to the list by
sending it to ExcessIron@mail-list.com
To contact the list owner, send your
message to ExcessIron-list-owner@mail-list.com
* Families HHelping Families Circle: online support group created & supported by the AHS
* Jim Barbers Iron Overload maillist
* Iron Overload Disorder Support Group Online
* Chatting about hemochromatosis at Yahoo (not very active)
* News Group alt.health.hemochromatosis: not very active
* German discussion-list on hemochromatosis
* FAQ on hemochromatosis: part 1: AHS
* FAQ on hemochromatosis: part 2: AHS
* How to get a diagnosis, step by step for patients: AHS
* Funny story of a pathalogist making a diagnosis
* Desferal: general information
Famous people and hemochromatosis
* AHS: Wishing Upon A Star....Do You
Know A Celebrity with HH?
* Beethoven and
hemochromatosis?
* Was
Beethovens cirrosis due to hemochromatosis?
* Information on Electrolytes and phlebotomy
* The Phlebotomy Bookstore (for your doctor/nurse)
* Phlebotomy: Southern California Phlebotomy training!!!
* The unofficial phlebotomy homepage
* Fun with Phlebotomies: Ironman
* The drawing room: a place for phlebotomists to discuss phlebotomy
* FAQ Phlebotomy, Calgary General Hospital
* Phlebotomy education from Learn Well Resources
* Blood collection: routine venipuncture and specimen handling
* (Abstract) Phlebotomy, blood donation, and hereditary hemochromatosis. (apr 2001)
* Draft guidelines for blooddonation from the FDA (dec. 2000)
* Blood Shortage Remedy Is Found, But Blood Banks and Fed Resist It: Probe Newsletter
* AHS: Bloodbanks and donation
* Australian Bloodbanks allow blood from haemochromatosis-patients
* Use of blood and article from Ann Landers on the subject of blood donation (july 1 2000).
* Transfusion: september 1999 (PDF): Use of blood therapeutically drawn from hemochromatosis patients.
* Transfusion: june 1999 (PDF): A survey of phlebotomy among persons with hemochromatosis.
* Transfusion: june 1999 (PDF): Hemochromatosis probands as blood donors.
* Transfusion: june 1999 (PDF): Hemochromatosis and blood donors: a perspective.
* Transfusion with blood from people with HFE-gene mutationsLancet, 31 july 1999Article in PDF
* 1998 Committee explorers use of blood from patients with hemochromatosis
* Discussion on Blooddonation in the US 04-99 SUMMARY
* Discussion on Blooddonation in the US 04-99: Full text
* Discarded blood could ease shortage (Reuters press-release: 18 january 1999)
* CNN Blood banks throw out blood from iron overload patients
* CNN.com - Evidence suggests that giving blood has health benefits - April 26, 2000
* Donating blood reduces haert-risk: Reuters, 9 september 1998 allso see Heart
* Possible association of a reduction in cardiovascular events with blood donation: 1997
* American association of blood banks
* Taking a small sample of blood: video --> 8000K!!!!!!!!
* Cat Scan/CT Scan by MedicineNet
* No liverbiopt in most hemochromatosis patients needed! BK
* Electrocardiogram (EKG) by MedicineNet
MRI
* Quantification of
liver iron concentration with magnetic resonance imaging by combining T1-,
T2-weighted spin echo sequences and a gradient echo sequence; Neth J Med 2000
Apr;56(4):133-7
* MRI (1995) for non invasive detection of low levels of iron
* Medline: MRI and hemochromatosis
* Pittsburg: UPMC Hemochromatosis Clinic
* Rochester University Medical Center See allso page with articles from magazines!
* February 2000: Iron beware: A common HFE gene polymorphism may prevent the accurate molecular diagnosis of homozygous hemochromatosis in low-risk, but not high-risk groups Hepatology Article in PDF
* February 1997 Hemochromatosis and "HLA-H": Definite! PDF!Hepatology * PDF: HFE mutations analysis in 711 hemochromatosis probands: evidence for S65C implication in mild form of hemochromatosis; Blood 1999 Apr 15;93(8):2502-5
* Health screen America offers DNA-testing for consumers
* Will Your Genes Prevent You From Getting Health Insurance?
* Michigan state University DNA-testing
* Family-guide about the genetics of hemochromatosis
* ARUP-lab
* Medical summary (very technical)
* Family Screening: Canadian Hemochromatosis Society
* Hyperferritinemia (abstract)
* Biochemical expression of heterozygous hereditary hemochromatosis (PDF!)
* The C282Y mutation of the hemochromatosis gene HFE
* Hemochromatosis in Heterozygotes: NEJM;dec 1996
* May 1999: Inherited HFE-Unrelated Hemochromatosis in Italian Families xxx Article in PDF
* Advice on supplements for hemochromatosis (very commercial!)XXX Comments on lef.org article
* Diet and other lifestyle advises: Australian Haemochromatosis-Society
* Blokking iron absorbtion by drinking tea!
* Food sources of Iron: Mayo Health
* Why fortify foods? * iron absorption
* Oysters
* Don't eat raw seafood when you have Hemochromatosis
* FDA-web site: search Hemochromatosis and find Vibrio fulnificus!
* Oysters
* Cuppa a day is live saver (tea)(BBC: 5 nov. 1998)
* Iron overload from drinking water and diet?! Medicinenet
* Tea may benefit blood vessels
* Vit C: Annals of internal medicine
* Kellogg's is dangerous for your health