LINKS ON HEMOCHROMATOSIS
Last update: August 31, 2013

 Medline: H(A)EMOCHROMATOSIS | Omim (hemochromatosis) | Newsarticles on Google
 World congress on Iron Metabolism 2015, China | European federation of HH-patients | Spanish and Portugese research



Protocols: AASLD (US) 2011 | EASL 2010 | Dutch protocol 2007 (english version) | Canada, Dec. 2006 | British Society for Haematology, Feb 2000 | French (english) protocol 2005  | Translation of French protocol treatment) | Deutsche Leitlinie hereditären Hämochromatose 2006

Fatty degeneration of the liver and slightly raised ferritin levels / For doctors:  Should we continue to perform liver biopsies in Hereditary Hemochromatosis (HH)?

* Preventing and solving problems with phlebotomy
* Newsgroups (talk to doctors and patients) on hemochromatosis!
* Books on hemochromatosis

The Iron Disorders Guide to Hemochromatosis (november 2009) by Cheryl Garrison.
Highly recommended! Everything you want to know on hemochromatosis and very up-to-date.

 


 


* CDC on hemochromatosis

* IRON DISORDERS INSTITUTE
(their magazine is highly recommended!)

* The Haemochromatosis Society UK (England, Scotland, Wales and Northern
Ireland
)

* CANADIAN Hemochromatosis Society

* Association Hemochromatose Foundation FRANCE other French HH organisation

* Irish Haemochromatosis Society

* Norsk Hemokromatoseforbund

* DEUTSCHE Haemochromatose Selbsthilfe Gruppe Haemochromatose: Dr. Sven Gehrke: Universitat HEIDELBERG Deutsches Haemochromatose Discussionsforum Zwitserland!

* Haemochromatosis Society AUSTRALIA (HSA)

* New Zealand Haemochromatosis Support Awareness Group

* Brasil

* België

* Haemochromatosis Society of South Africa

* SPANISH Hemochromatosis Organisation

* American Hemochromatosis Society

* Iron Overload Disease organisation (IOD)

ITALY
* Italian article on hemochromatosis with adresses!
* Allso search Haematologica.it for hemochromatosis (doctors)
* Frequency and biochemical expression of HFE in Italy (2001)

FINLAND
* Gastrolab--> go to hemochromatoosi

SWEDEN
* Gastrolab--> go to hemosideros

* DUTCH hemochromatose vereniging


PRIVATE AND OTHER PAGES

* Neonatal Hemochromatosis Support Group
* Tom and Joans page and story on hemochromatosis
* Hemochromatosis Awareness Society

 


Mail Webmaster: webmaster@hemochromatosis.co.uk

PLEASE SUPPORT YOUR LOCAL HEMOCHROMATOSIS ORGANISATION,
if you give to charity, give it to them

This list is not complete and the author does not take responsibility for the content of the information given. Allways contact your doctor!!!

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